VANRAMAH KA KAL DAWN": NATNA ȚIHBAIAWMIN A NGAMLOH NAUPANG HUAISEN KUM 7 MIIN A THIH DAWNA A ȚHIANTE TANA A LEHKHATHAWN HNUTCHHIAH CHU
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England, Stoke-a khawsa naupang kum 7 mi Marshall Clark-a chuan natna țihbaiawm tak 'nervous system' khawih chhetu 'Late Infantile Batten Disease' chu veiin, a rilru leh taksa namen lovin a sawisa rethei a, mahse tlâwm duh lovin huaisen takin a tawp rat thlengin a bei lêta, a thih dawn hnaih-a a țhiante tana a thuziak hnutchhiah ațangin thihna țihbaiawm meuh pawhin a ngam lo tih a hriat theih a ni.
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2013 kum khân natna vâng leh nunrawng tak Batten Disease chu a vei a ni tih hmuhchhuah a ni a, hetih hunlai hian UK pûmpuiah he natna vei hi naupang 25 chauh an awm nghê nghê a ni. Naupang chumchiap mai mah nise, Marshall-a rilru paukhauhna leh chhelna hi a namailo hle a, a natna vei runthlak tak chuan a rilru leh taksa nasa taka a nghaisa rethei chho chungin, amah thlawp țha êm êm tu, a nu Lara Clarke leh a pi 'Nana' Elsie-i te fuihna leh puihna-in huaisen leh chhel takin a beileta, a tawp rat thlengin tlâwm duhlo tluan țhak mahse Oct 29 khân a natna nunrawng tak chuan a nunna a chhah sak ta a ni.
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A boral hma lawkin a țhiante chhiar atan lehkhathawn a hnutchhiah a, tahchuan tihian sawiin..
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Ka țhian duhtakte,
Hei hi helai hmuna ka thuchah(message) hnuhnung ber a ni tawh ang, a chhan chu he lehkhathawn hi in lo chhiar meuh chuan Vanramah ka awm daih tawh dawn a ni.
Ka pawiti lo, a chhan chu Nana(pi) in a chungchâng leh ka thlen huna thil nuam tak tak ka tih țeuh theih tur thute min hrilh lawk vek a ni.
Vanramah chuan inawmlemna tinrêng a awma, strawberry leh cupcakes te dulhmul khat thuarin ka ei leh thei tawh dawna, video en theiin, ka tlan kual zar zar thei tawh dawn bawk a ni.
Ka ngaihluat vang che u in ka ngui ruai ang tih ka hlauthawng țhina, mahse Nana-in mite'n min hmangaihna chu a chak êm a, ka kiang hnaia in awm reng ang maiin ka inhre dawn a ni a ti.
Nana-i'n mipa naupang piang tawh zawnga la huaisen ber min ti. Ka natna Batten disease in iPad khawih theilo leh mahni-a eitur inbarh theilo leh infiam theilova min siam hnu pawhin ka la nui sâng reng thei a, ka tlûk zut reng vang emaw chaw ka ei theih loh vanga ka puma tube an rawlh luh hial pawhin ka țap chhin eih lo.
Nana-i chuan ka chunga thilthlengte chu lungawi taka ka pawm thu min hrilh a ni.
Che theilo, țawng theilo leh khawhmu thei lova ka awm hnuin, in lehkha min thawnte Nana-i'n min chhiar chhuah sak țhina, nuam ka ti thei hle. Ka tan in awm renga, min thlamuanin min hmangaih a, ka thinlung chhungril tak ațangin lawmthu ka hrilh mawlh mawlh a che u. Mahse tunah chuan 'mangțha' ti-a ka thlahliam che u a ngai ta si.
Lots and lots of love to you all, your Marshall xxxx
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Marshall-a hi a natna an hmuhchhuah ațanga thla 18 chhung lekin khaw hmu thei lovin leh țawng thei lovin a awm zui nghala, zan thim hlauhnate, kaih thut thut leh tha khurhnate nei chho bawkin, a natna chuan a nun a ti hrehawm takzet a, mahse a rilru tipaukhah tlatin a natna chu a runluih ngat ngata, a inbawhbet tir duh ngailova, lungawi leh hlim hmel a pu lui hrâm hrâm țhin a ni.
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A hriselna a tlakhniam lama amah enkawl chawttu, a pi leh nurse hlui ni bawk, 'Nana' Elsie-i'n a sawidanin, nikhatah vawi 40 tawp te a tlu leh hnawk țhina, mahse a țap ngai eih lova, a sawisel ngai lova, a beidawng duh ngai heklo. A tluk zut reng avangin helmet a khum tawp țhin a ni. A kal theih loh hnuah pawh a la bawkvak ngat ngata, che theilo leh țawng theilova a khumbeh leh hnu pawhin a la nui lui hrâm hrâm tho a ni a ti.
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Elsie-i hian a huaisenna leh tuarchhelna chu mak atih thu a sawi a, 'naupang duhawm leh huaisen, a naupan phu lova a natna pawm dam thiam" tiin a chungchang thu a sawi nghe nghe a, "A hringnun kha damlai hremhmun a ni a, tunah chuan a zalen ta" a ti bawk.
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Naupang huaisen Marshall Clark-a ruang hi a pianchampha November 8-ah an vuiliam dawn a ni.
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~~Joseph Lr Chhangte~~
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England, Stoke-a khawsa naupang kum 7 mi Marshall Clark-a chuan natna țihbaiawm tak 'nervous system' khawih chhetu 'Late Infantile Batten Disease' chu veiin, a rilru leh taksa namen lovin a sawisa rethei a, mahse tlâwm duh lovin huaisen takin a tawp rat thlengin a bei lêta, a thih dawn hnaih-a a țhiante tana a thuziak hnutchhiah ațangin thihna țihbaiawm meuh pawhin a ngam lo tih a hriat theih a ni.
.
2013 kum khân natna vâng leh nunrawng tak Batten Disease chu a vei a ni tih hmuhchhuah a ni a, hetih hunlai hian UK pûmpuiah he natna vei hi naupang 25 chauh an awm nghê nghê a ni. Naupang chumchiap mai mah nise, Marshall-a rilru paukhauhna leh chhelna hi a namailo hle a, a natna vei runthlak tak chuan a rilru leh taksa nasa taka a nghaisa rethei chho chungin, amah thlawp țha êm êm tu, a nu Lara Clarke leh a pi 'Nana' Elsie-i te fuihna leh puihna-in huaisen leh chhel takin a beileta, a tawp rat thlengin tlâwm duhlo tluan țhak mahse Oct 29 khân a natna nunrawng tak chuan a nunna a chhah sak ta a ni.
.
A boral hma lawkin a țhiante chhiar atan lehkhathawn a hnutchhiah a, tahchuan tihian sawiin..
.
Ka țhian duhtakte,
Hei hi helai hmuna ka thuchah(message) hnuhnung ber a ni tawh ang, a chhan chu he lehkhathawn hi in lo chhiar meuh chuan Vanramah ka awm daih tawh dawn a ni.
Ka pawiti lo, a chhan chu Nana(pi) in a chungchâng leh ka thlen huna thil nuam tak tak ka tih țeuh theih tur thute min hrilh lawk vek a ni.
Vanramah chuan inawmlemna tinrêng a awma, strawberry leh cupcakes te dulhmul khat thuarin ka ei leh thei tawh dawna, video en theiin, ka tlan kual zar zar thei tawh dawn bawk a ni.
Ka ngaihluat vang che u in ka ngui ruai ang tih ka hlauthawng țhina, mahse Nana-in mite'n min hmangaihna chu a chak êm a, ka kiang hnaia in awm reng ang maiin ka inhre dawn a ni a ti.
Nana-i'n mipa naupang piang tawh zawnga la huaisen ber min ti. Ka natna Batten disease in iPad khawih theilo leh mahni-a eitur inbarh theilo leh infiam theilova min siam hnu pawhin ka la nui sâng reng thei a, ka tlûk zut reng vang emaw chaw ka ei theih loh vanga ka puma tube an rawlh luh hial pawhin ka țap chhin eih lo.
Nana-i chuan ka chunga thilthlengte chu lungawi taka ka pawm thu min hrilh a ni.
Che theilo, țawng theilo leh khawhmu thei lova ka awm hnuin, in lehkha min thawnte Nana-i'n min chhiar chhuah sak țhina, nuam ka ti thei hle. Ka tan in awm renga, min thlamuanin min hmangaih a, ka thinlung chhungril tak ațangin lawmthu ka hrilh mawlh mawlh a che u. Mahse tunah chuan 'mangțha' ti-a ka thlahliam che u a ngai ta si.
Lots and lots of love to you all, your Marshall xxxx
.
Marshall-a hi a natna an hmuhchhuah ațanga thla 18 chhung lekin khaw hmu thei lovin leh țawng thei lovin a awm zui nghala, zan thim hlauhnate, kaih thut thut leh tha khurhnate nei chho bawkin, a natna chuan a nun a ti hrehawm takzet a, mahse a rilru tipaukhah tlatin a natna chu a runluih ngat ngata, a inbawhbet tir duh ngailova, lungawi leh hlim hmel a pu lui hrâm hrâm țhin a ni.
.
A hriselna a tlakhniam lama amah enkawl chawttu, a pi leh nurse hlui ni bawk, 'Nana' Elsie-i'n a sawidanin, nikhatah vawi 40 tawp te a tlu leh hnawk țhina, mahse a țap ngai eih lova, a sawisel ngai lova, a beidawng duh ngai heklo. A tluk zut reng avangin helmet a khum tawp țhin a ni. A kal theih loh hnuah pawh a la bawkvak ngat ngata, che theilo leh țawng theilova a khumbeh leh hnu pawhin a la nui lui hrâm hrâm tho a ni a ti.
.
Elsie-i hian a huaisenna leh tuarchhelna chu mak atih thu a sawi a, 'naupang duhawm leh huaisen, a naupan phu lova a natna pawm dam thiam" tiin a chungchang thu a sawi nghe nghe a, "A hringnun kha damlai hremhmun a ni a, tunah chuan a zalen ta" a ti bawk.
.
Naupang huaisen Marshall Clark-a ruang hi a pianchampha November 8-ah an vuiliam dawn a ni.
.
~~Joseph Lr Chhangte~~
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